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About the XP Support Group
animoon_sm.gif The XP Support Group is a UK charitable Trust founded in 1999 by parents of a child with XP. It aims to relieve the needs of persons with Xeroderma Pigmentosum and other related conditions and their families. The Group raises funds for research, gives grants for UV protective equipment and products, assists families to attend night time camps in the UK, USA, France & Germany or respite in a protective environment. We strongly encourage you to visit the weblink.pngXP Society and weblink.pngXP Family Support Group web sites and invite you to return here for UK specific content and information.
UK registered Charity no 1075302
 
Magical Gift for XP!

We are delighted to report that the author J K Rowling has donated a signed set of the seven Harry Potter books which will be put up for auction.

The Support Group was j_p_masclet_ap_jk_rowling_pics_0072.jpgbrought to the attention of Ms Rowling by Kate Middleton the mother of David aged 7, who has XP. David was the lucky recipient of a number of gifts from Ms Rowling which included a copy of Harry Potter and the Half Blood Prince signed by actors of the forthcoming film. The Support Group will be the third charity to benefit from Ms Rowling’s generosity.

The books will be auctioned on e-Bay for charity in the Autumn to coincide with the release of the sixth Harry Potter film.

Photo courtesy of JP Masclet

 
Family Liaison Officer.

Today we launch an appeal to fund a specialist nurse for XP and light sensitive patients to act a Liaison Officer between all the services that affect an XP patient. This nurse will also be a clinical nurse who would be available at the XP Clinic held at St John’s Institute. We are actively seeking funding from outside  Organisations but we are also looking for you to help.

 If you would like to make a donation , please send a cheque to made payable to the XP Support Group or donate on-line at www.xpsupportgroup.org.uk and quote “Nurse Appeal”.