We are delighted to report that the author J K Rowling has donated a signed set of the seven Harry Potter books which will be put up for auction.

The Support Group was brought to the attention of Ms Rowling by Kate Middleton the mother of David aged 7, who has XP. David was the lucky recipient of a number of gifts from Ms Rowling which included a copy of Harry Potter and the Half Blood Prince signed by actors of the forthcoming film. The Support Group will be the third charity to benefit from Ms Rowling’s generosity.

The books will be auctioned on e-Bay for charity in the Autumn to coincide with the release of the sixth Harry Potter film.

Photo courtesy of JP Masclet

Today we launch an appeal to fund a specialist nurse for XP and light sensitive patients to act a Liaison Officer between all the services that affect an XP patient. This nurse will also be a clinical nurse who would be available at the XP Clinic held at St John’s Institute. We are actively seeking funding from outside  Organisations but we are also looking for you to help.

 If you would like to make a donation , please send a cheque to made payable to the XP Support Group or donate on-line at www.xpsupportgroup.org.uk and quote “Nurse Appeal”.